DISCLAIMER: I AM NOT A MEDICAL DOCTOR! I AM JUST SHARING MY METHODS WITH OTHERS THAT MIGHT BENEFIT. FOLLOW AT YOUR OWN RISK.
Hidradenitis Suppurativa is a chronic skin condition accompanied by boils, pain and inflammation. I was diagnosed with HS three years ago, but I have been afflicted by the condition since I was 9. Through the years I have had to learn how to handle my flareups and what comes with them. I can tell you that the process hasn’t easy- by any means! Having HS in the severity that I do, trying to adjust to an everyday life can be quite difficult; especially a busy working life. You never know what to expect from this disease and going out in public with a several flareups on your body with their own plans in mind… To be honest Hidradenitis Suppurativa SUCKS and today I am going to tell you specifically how.
Flareups Feel Like Hell
If you ask me what a flareup feels like, the first thing that comes to mind is hell. Straight up, no thinking, it feels like hell. I would rather be in labor for 19 hours again with NO medication than to go through the process of a flareup trying to burst. Some of them have prevented me from using the bathroom properly because putting pressure on them triggers a slight stress response on your bladder (for me, everyone’s body is different). I can best describe the pain as from light pinches to hot pinneedles to someone branding me with an 5 million degree branding iron. The pain meter with me is usually an average of an 8. I wouldn’t wish it on anybody.
When It Drains, It Pours
DRAINING. You would think it would be one and done and then it’s over, right? Nope The second worst part of HS is draining. Especially when they are bigger in size, oh goodness. The draining process for me has lasted up to 4 days, which has often resulted in huge inconviences when I had important places to be such as work and school. The drainage has two ways of making itself present and that’s through staining through your clothes and through smell. There have been times where I had to call off work or leave school because the smell would not go away or the drainage was just too much for my clothes. I am still learning to manage this problem, but I have found that using unscented pads, gauze and bed underpads help with managing the drainage. Deodorizing the smells can be quite a task as well because products with scents tend to be irritants. I have yet to find a scent option but I will be on a quest to do so.
HS has made me miss out on a lot of job opportunities, school, and spending time with my friends and family. It’s hard trying to explain to your boss that you missed work because you have a “boil”. It will just sound like an excuse thus having your boss questioning if he should keep you employed or not. That’s why more awareness needs to be brought to Hidradenitis Suppurativa so in situations like missing work or school can be legitimized. I am so tired of having to explain my situation to those who choose not to recognize or understand.
Ibuprofen Is My Friend… And Enemy
Ibuprofen has gotten me through a lot of pain, sleepless nights and tears . If it weren’t for Ibuprofen I wouldn’t have been able to make it all these years. She’s basically my best friend. Ibuprofen is my go to medication and when my flareups are on the fritz you better believe I’m taking some. I am clinically prescribed 800mg so I’m extremely grateful. Though I’m glad I have a strength that works best for me it can cause dangerous effects to my body; especially at the frequency I have to take it. Love that. I once had a flareup that I just could not deal with and I went through half a bottle of the ibuprofen in a week. You see my pain right? I hate that I can go through ibuprofen that fast. Considering my situation I honestly had no choice. What are some good pain managements?
I Have Hidradenitis Suppurativa, Still Interested?
Explaining to a person you’re interested in that you have HS can be a gamble. Their reaction could go either two ways: right or left. You will encounter those who will look at you funny when you tell them about your condition and they may not want to pursue you any further. And that’s good. Let them be ignorant and shallow. If they don’t care to educate themselves instead of being superficial dingdong then that’s their loss, honey. I had to learn that when I started dating. I would be scared to open up about it to a point I wouldn’t even mention it. I’d just wait until the person saw it on their own and ask what it was. I’m not ashamed of my truth anymore. Don’t let one bad apple spoil the bunch. There’s somebody for everybody out here and you better believe their is someone will to understand what you are going through. Someone who will take the time to educate themself and know the facts, just for you. The biggest thing to do though, is love your damn self. Having HS can sometimes put a damper on your self esteem. Your body can be your worst enemy but you got to learn to love it. As much and you hate what it comes with, it’s apart of you. And once you learn to love it, you won’t care who loves it and who doesn’t. You are more than HS. You are YOU first and foremost and HS is just apart of you.
Hidradenitis Suppurativa sucks. That’s it. That’s the post.